Thursday, 4 May 2017


Good news

This has been one of out best weeks.  We saw the oncologist on Monday and had such good results.  Macmai's liver function and tumour markers are massively down and his blood counts were fine for further chemo this week.  The oncologist's words - I have achieved my goal with more quality time with the family.  And Macmai is better in himself, more engaged now and unexpectedly starting to eat more, albeit sporadically and with sudden desires. Grapes and nuts and then gingerbread, half a loaf in one day and the order is in for another. It is now feeling like to me that perhaps we do have a little more time.

So today we were down again to the hospital for another round of oxaliplatin and 5FU.  The drugs all have their little idiosyncrasies. Oxaliplatin causes all sorts of neurological issues, often exacerbated by cold. It is colder now  and on leaving the hospital Macmai had two little transient episodes of hoarseness.  We will need to be careful of cold food and drink over the next few days.  No grapes straight out of the fridge.  They are a happy mob the nursing staff in the Day unit, friendly, cheerful and caring.  It makes such a difference, especially when one spends many hours down there.

The little boys came for a visit on Sunday.  They had been with our son and beautiful daughter-in-law for a picnic lunch at the river.  We haven't seen them as much, too many snotty noses and bubbly bottoms is a bit of an infection risk.  We sat outside for tea in the garden in the lovely Autumn afternoon light that makes the back garden a place of great peace and traquility at this time of year.  Pikelets and special drinks for the little boys and lots of rolling about on the grass.


We had been earlier to a local market with stalls of mainly bric-a-brac and in one I found a darning mushroom.  Not a common sight these days.  It will join the collection of sewing bits and pieces that I have.  My Mum and Macmai's mum always used cowrie shells for darning so I have several of those as well. The boys were fascinated.

CC BY 2.5, https://commons.wikimedia.org/w/index.php?curid=66026


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